
A non-profit dedicated to a rare disease that affects 1 in 100,000 girls worldwide. Together, we are raising awareness, educating the public and working to expand access to disability care. Our content also highlights broader disability topics in Manitoba, including how to access support, what happens behind the scenes in the health care system and how families can stay connected.
Key Work | Ongoing
- Raising 25,000 dollars to support the Manitoba Rett Syndrome Association
- Interviewing scientists in the epigenetic and neurobiology fields
- Promoting the pRETTy Awesome t-shirt initiative